When I first started getting palsy, I would get a cold and a little bit of flu.
It was awful.
Then, I started to notice the flu was getting worse.
I was like, oh, this is a serious problem.
And so I started getting really sick.
It started to become really hard to walk around.
It got really bad and I couldn’t use the stairs, so I had to use the back steps.
I could hardly walk down the stairs.
I couldn`t use the elevators.
Theres so many things that are limiting your mobility.
So I ended up getting an ankle brace, which I have to wear.
And I started losing a lot of weight, which is why I lost about a quarter of my height.
And then, theres this really bad, recurring side effect of the palsys treatment.
I have this infection called keratoconus.
I started having this inflammation and theres nothing I can do about it.
And theres just no way that I can make a dent in the swelling.
So I had a couple of surgeries.
I`ve been getting treatments for a long time now.
I`ve tried everything that I could think of, because I was really tired.
But my doctor said it`s probably better if I stop doing anything and just get some rest and I can heal.
So now I`m doing a lot more walking.
I went to a couple local skate parks.
I skateboard at least once a week.
And my husband loves to skateboard and skateboard a lot, too.
I have this disease, and I think there is something that I have never known.
I think that maybe this illness is a bit different from any other illness.
You can get an infection from an environmental source, like when you breathe in air or you breathe out air.
But the disease can be from something else, like an allergic reaction.
And there are different kinds of allergies, and so when I have the disease, I get different types of infections, depending on the type of the disease.
It doesn`t seem to be like any other disease that I`d been having.
And it seems to be a very unique illness.
I had to get a blood test.
And when I did the test, I had an abnormal number of red cells in my blood, which indicates that my immune system is going haywire.
And after I got a blood sample, my doctor had a little talk with me and said, okay, I think we have an opportunity to help you with your cancer.
He said, what are your chances?
I had never seen this in my life.
And he said, there are about a 30% chance of success.
And if we can cure your disease, it`ll take 10 years to get to 100%.
I`m on chemo right now.
We have to do it in three months, and then I will be free to be in the house.
I really feel that it`d be better for me to have a normal life.
I feel that my life is normal now.
It`s really hard for me when I can’t do anything.
And at the end of the day, I want to be happy, and that`s what I want.
So when I go to my doctor, he says, I really think you can do this.
I know that I will take care of you.
He says, you are so close to achieving that goal.
You are living life to the fullest, and you are going to be fine.
And that is a big comfort.
And now, I am just waiting for the chemo to be finished and I am free to go.